Over the past four decades, the prognosis for intestinal failure–associated liver disease dramatically improved. Patients, especially young ones, who had resected bowels and were dependent on parenteral nutrition had few options once their bilirubin began to rise.
“Many children would die of IFALD. It was kind of expected,” said Kathleen Gura, PharmD, a pharmacist at Boston Children’s Hospital and the board director at the American Society for Parenteral and Enteral